On 20th June 2022, my mum took her final breath. It was an emotional and difficult day but one surrounded by lots of love. She died peacefully with her 3 kids and husband right by her side. As you can imagine, things have been difficult since then and I have experienced many emotions. I will write a blog about this because my reaction has been nothing like I imagined. I thought I was prepared, I thought I had already grieved enough given I lost mum way before she died. I was

You'll notice I haven't published in 6 months, and I thought this was because I had nothing to say. Then I realised...

I'm not even sure where to start with this blog. I've written about 937 different sentences and deleted them all. Should I apologise for abandoning my readers for 235 days? I think I probably should. So many people have been concerned and I haven't had the strength to reply to those who reached out. Then again, do I really have to apologise for needing a break? I'm so conflicted. In fact, conflict is a big word, and it's a huge factor in my absence recently (my therapist taug

It's been 4 days since I received the results to my own genetic testing and for those who don't know, unfortunately I did test positive and I have inherited the C9ORF72 gene mutation. I posted a 12 minute video which explains my thought process throughout the morning, followed by an update once I received the news. I filmed this as I know there are many people who read my blog and are considering going on the same journey. Disclaimer - I really rambled through parts of this.

The memories I have of this next chapter are absolutely outrageous but also hilarious. Have a read to see how life went on after diagnosis!