It's clear to me that despite the many people affected by FTD, there are very few resources available regarding this specific and rare form of dementia. I know this from experience and my own journey felt incredibly lonely.

I receive messages almost every day from people who, like me, just need to reach out to someone who understands. As my blog has grown, I'm finding it more and more difficult to reply and quite honestly, it breaks my heart. I wish I could reply to everyone but with only 24 hours in a day, it's too hard. This is why my online forum has been created, to build a community where all of you can collaborate and support each other.

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Reach out, ask for support, vent, share your stories and upload your pictures...

This is a community built just for you.